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Jsummer I Made A Huge Mistake In. El aro versi n japonesa que n. Old and is a very happy young man with a fun sense of humor.

His little cry was very hoarse, as if he had something in his throat. He had a Tracheo Esophageal Fistula TEFand they proceeded to draw me a picture. Just as he’d recover from one finding, they’d find something else wrong. C for coloboma and cranial nerves H heart defects A atresia of the choanae R retardation of growth amp. Development G genital and urinary abnormalities E ear abnormalities amp. This was probably the sickest he’d ever been and he was not expected to live.

For the benifit of other CHARGE parents, I must add a personal note here. He is tactile Glycerin soap making and has Proprioceptive issues. He has difficulty walking on un level ground and cannot walk longer distances as he tires easily, due to his small lung capacity.

He enjoys using the computer and can read at about a second grade level. In September he was diagnosed with Celiac Sprue Disease and Lactate Deficiency. On February, he had surgery at St. In September, Jeff was diagnosed with osteoporosis.

On May th he was started on Synthroid. He Bart sf has blood draws every months to check valporic acid levels because of the Depakote he is taking. ALLERGIES SENSITIVITY Environmental allergies Medical tape adhesive.

We do have to watch him closely because he eats screws, bolts, nails, or anything else he thinks is interesting. He wants to eat the nuts, bolts, etc.

We are working very hard at hiring or more Support Workers to work with him so that he will have that consistency. The important thing is that he be kept busy, virginia, fulfilled, loved and happy. He is my mentor, my hero, my teacher. I know he certainly has taught me what’s most important in this life. But I can truthfully say, it’s been worth every tear I’ve shed, every ache in my heart, every fight I’ve had to fight.

Most have hearing loss, vision loss, and balance problems which delay their art sound and communication.

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